Fibromyalgia seems to have a never ending list of symptoms, doesn’t it? Just when you thought you’d had enough with headaches, TMJ, tinnitus, pain, chronic fatigue, IBS, cognitive disfunction, allergies…along comes a tingly big toe and you start to wonder whether this is yet another item to add to the list. Continue reading “Co-morbidities”

AIDAPT Blanket Bed Cradle,Adjustable Height.

If, like me, you get allodynia as part of your fibromyalgia smorgasbord, you may find the weight of your duvet too much for your feet. My duvet is very light, but there were night when it was enough to make sure I got no sleep. Continue reading “AIDAPT Blanket Bed Cradle,Adjustable Height.”

New Look, New Aim

It has been a very long time since The Fibronaut was updated. This project started out as a community site. I hoped that many other fibromyalgia sufferers would want to contribute their own experiences so that we could all learn from each other but that didn’t happen. We’re not always well enough to write an article, we can be in too much pain, or too tired or depressed and I hated having to go around hassling people about it. I didn’t want to write all the articles myself because the site wasn’t about me, it was about us all.

So I let it slide and did nothing. Then I got to thinking. I could write about my own experiences and hope that they would resonate with my fellow Fibronauts. It might be easier for them to share their problems and successes in a comment than to write a whole article. I know that I find it very difficult to find words – as you can tell from this post – and being faced with a blank screen or sheet of paper can fill me with a great sense of panic.

So this is the new Fibronaut: me letting my belly rumble and, hopefully, at least some of what I say might resonate with you.

If this sounds like something you’d be interested in, please subscribe and I’ll do my very best to post regularly.

May today be a good day.

E is for Exercise

Fibromyalgia and Exercise. There’s an oxymoron. If you’re anything like me, getting out of bed and making your way downstairs in the morning is the equivilant of Usain Bolt’s 100m sprint. Except slower. With more grunting and groaning. And no lightning bolt. But if you read the advice, many experts recommend exercise as a way of managing our pain. If you want to give it a go, it’s best to approach it sensibly. Below I’ll tell you what the experts say. My own interpretation is in italics.
1. “Exercise is one of the most effective treatments for fibromyalgia,” says Daniel Clauw, MD, professor of anesthesiology and medicine at the University of Michigan. (Walks to the bathroom. AND back)

2. Start slowly. Walk a bit more; climb some stairs. (Looks at the stairs. Decides that’s enough for one day)

3. L|isten to your body and don’t over do it. (What’s that, body? You want to lie down with a blanket and a cup of tea?)

4. Do a little every day. (Lift mug of tea to lips, drain, repeat)

5. Modify your workout: What time of day is best for you? Take frequent breaks. Stretch, (Best time of day for me was late morning n 1985)

6. Be patient. Results can take up to 6 months. (Six months? All this extra pain and discomfort and no gain for 6 months? Pass the chocolate and make me a cuppa.)

In all seriousness, many people have reported vast improvements in their symptoms using gentle exercise. I have arthritis in my back which makes staying upright a challenge most days, but if you can manage to keep active, your health will benefit.

l advice from Dr Clauw here. And remember, don’t start any exercise regime without the approval of your own doctor.